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Chronic Illness

A Diagnosis Matters…

Jun 16. 2017

Being undiagnosed and having no answers for the peculiar going on inside our bodies is very much like being stuck in a darkened room with no light. [caption id="attachment_71739" align="alignnone" width="1125"] Living without a diagnosis is very much like life in the dark[/caption] After every uneventful doctors' appointments, and every negative test results only moves the light switch further from our grasp, and we remain, still in the dark.  You begin to fear every upcoming appointment for the worry that this meeting will...

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Rhiann Johns
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Chronic Illness

In the dark and in the unknown…

Aug 10. 2014

This is a very hard post to write.  Not only because of its contents but also because of the way recent events has left me feeling, which is very down if I am to be honest with you all. This is because last Tuesday, I had yet another hospital appointment with the neurological consultant that I am under.  The purpose of this visit was a follow-up on how I have progressed since the last visit but also to find out the...

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Chronic Illness

Keep Calm…and Stay Positive

Aug 25. 2013

As most of you know, that due to the unknown cause of my neurological condition is starting to get me down.  It is frustrating and disheartening when the doctors are unable to give you the answers that you so desperately crave.  It is simple - being undiagnosed is dejecting and can causes psychological symptoms such as depression.  All we crave is a diagnosis - a name for the cause of all that we go through on a daily basis.  A...

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