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Becoming Lost During a Flare: Revisiting Acceptance

Becoming Lost During a Flare Blog Post

During my recent foray into revisiting my old posts, I came across this post from five years ago. In the post, I talk about the importance of acceptance when learning to live with a chronic illness.  It also made me reflect on my current decline in some of the symptoms I experience because of FND. [embed]https://twitter.com/serenebutterfly/status/1041669618371362817[/embed] Once again, the trembling in the legs has worsened. Significantly worsened in fact. The Saga of Pain and Trembling Legs Every day, my legs have felt incredibly unstable and weak,...

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The Unchanging Existence of Life with Chronic Illness

"But everybody's changing and I don't feel the same" - Keane Well, Christmas has now been and gone.  The presents have been enthusiastically ripped opened.  We've overindulged ourselves with turkey and all the other delicious trimmings that adorn our plates (as well as all the chocolates that someone has inevitably bought you!).  Sick of turkey yet anyone? Now as we enter the last week of 2016 however, it is a time to reflect on the year that has passed and the journey that...

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Walking Through Life with Shaking Legs…

Recently I have been reading many blogs written by others who also live with chronic illness.  In some of these posts, chronically ill bloggers have been sharing their stories of living with their worst symptoms, and as a result, I thought that I would share my own personal story of life with trembling legs caused by a neurological condition. If someone had asked me a few years ago what was my worst symptom, then I undoubtedly would have replied with...

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Diagnosis is not the end of the story…

Recently, after another hospital letter landed on the doormat, it was time yet again for a visit to the consultant neurologist, whose care I am under in the attempt to shed some light on the medical mystery that feels has become my life.   The beginning of the appointment was the benign initial chat on how I have been feeling since the last appointment (a really short time to cover a year in just a few minutes!) and the regular neurological examination,...

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A New Normal…

For a couple of days this week, imagine my surprise that I awoke to no trembling or even pain in my lower limbs.  None of the severe shakiness that makes me feel that I am balancing on jelly.  No sign of the often debilitating pain that feels as if my legs are being squeezed in a vice, and which makes me wish that I could tear my legs off and discard them as many young children do with their dolls. For...

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