Waking After a Night of Painsomnia This morning, I awoke with a start as the alarm started to blare signalling the beginning of a new day. Except, that my day started many hours before. When the bell began to sound, however, I had only managed to grab a couple of hours sleep. Why? Because of painsomnia. Painsomnia is the lack of sleep or inability to obtain sufficient sleep because of physical suffering, like chronic pain. ...
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If I were asked to sum up my current life in just one word, then there is only one word I could conjure which would adequately describe it. Pain. From the moment I wake up, and until I (finally) fall asleep, all I can feel is the pain that assaults my body. The pain has become the bookends of my days. My entire life and existence becoming defined by its tight grip. It is all-encompassing. There are no aspects of life that...
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At the beginning of 2018, reflecting on 2017 and the year that I wanted to live, I chose resilience as my Word of the Year. Choosing a word, or theme for the year ahead is much less rigid than making New Year's Resolutions. Resolutions are difficult when living with a chronic illness as they are so unpredictable. Symptoms can flare at any time. Even with extreme effort, resolutions are hard to keep, especially when we are too sick or in too...
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Sheryl from A Chronic Voice, as well as sharing her own stories and lessons with chronic illness. Sheryl is an excellent support to other bloggers and writers living with illness and chronic pain. One such way is through monthly link-up parties whereby bloggers and writers share their stories through given prompts. I’ve decided to take part in this month’s Link Up Party, using the prompts to describe my experience during the latest flare caused by Functional Neurological Disorder (FND). Budgeting Budgeting: Noun. An...
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Being A Prisoner to Illness Loneliness. Isolation. Solitude. Three words that I would describe life with a neurological disorder. Excluding words, of course, associated with the symptoms that accompany said condition. You become a prisoner to chronic illness; a prisoner in your own body. Not fitting in Having experienced symptoms from a young age, I have always felt like I've never fitted in anywhere. Like Belle, from 'Beauty and the Beast' I have always felt that others think of...
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