"I'm Not Faking Being Sick; I'm Faking Being Well." ...
Continue reading"I'm Not Faking Being Sick; I'm Faking Being Well." ...
Continue readingIn my last blog post, I shared how I often feel invisible when reading books because I can never find authentic portrayals of chronic illness in fiction. In this post, I share 6 beautiful novels about chronic illness with authentic and relatable chronically ill characters. The books surrounding me offer opportunities as I lie on my bed, tethered to it by chronic illness. Every book is a magical passport granting freedom and the possibility to escape the real world for...
Continue readingFebruary is the month of love. The world likes to remind me of it every day; emails flooding my inbox of gift ideas from retailers on what to buy that special someone. My social media feeds drown in stories of love and relationships and cliched quotes about romance. But these do not invoke warm feelings or feeling included. Instead, I find myself shrouded by loneliness; dating and my life with chronic illness seem so incompatible. Seeing so many revelling in...
Continue readingIt might seem surprising for someone who has spent much time talking about their health condition and disability online. Many would assume that I am completely comfortable about it since I share so much about it on social media. But in fact, it couldn't be further from the truth. The truth is, I am not confident or comfortable talking about my health condition or disability, particularly offline. It has and still can be a struggle for me to express the...
Continue readingI am not sure if I'd consider myself disabled. To look at me, you would not immediately bear witness to the complications and challenges that arise from living with a neurological disorder such as FND. So, if I don't look disabled, does that mean I'm not?...
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