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Welcome to the Health Activist Writer’s Month Challenge brought together by WEGO Health – a social network for all health activists.  Again, I am participating in the annual Writer’s Month Challenge in which I will be writing about my health activism and health condition based upon prompts given.

Today’s prompt reads as follows:

Travel Time…If you could travel to anywhere in the world, where would you go?  Why?  We also know travelling with a chronic illness can be challenging, so any tips for others that you can share would be great!

This particular prompt is a very interesting one for me, as in just over two weeks I myself will be going on holiday!  Yes, I am due to go on the first holiday I have had for a number of years.  The prospect is both very exciting and nerve-wracking.  This is the first holiday since my diagnosis of my neurological condition, and in addition is the first time I will be travelling since my symptoms have become worse, such as the mobility problems I live with as well as the worsening of the dizziness and vertigo.

My parents and I are going on a cruise with Royal Caribbean, sailing on one of their magnificent ships ‘Adventure of the Seas’ departing on May 8th.  The cruise is to travel around the Mediterranean visiting places such as Cadiz, Barcelona, Nice, Livorno and Rome.  I am particularly looking forward to visiting the places in Italy, as it is a country that I have wanted to visit.  I love Italian food, and think the language sounds beautiful.  It is a place full of history, a subject that I am interested in, and the architecture of its building are spectacular.

The beautiful cruise ship that I am about to depart on for my adventure around the Mediterreanean
The beautiful cruise ship that I am about to depart on for my adventure around the Mediterranean

I will admit that after I was diagnosed with the neurological condition, and since the symptoms that I constantly live with worsened I thought that I would never get to visit the sights in Italy that I had wanted to visit since I was young.  For example, I am unable to fly as due to my dizziness I would not be able to handle being in airports for a considerable amount of time because of their considerable size and high ceilings.  There are several local bus companies that do offer trips to Italy, however since the pain in my legs has worsened during the past couple of years, we ruled that option because of the likelihood that being in a bus for a long time without being able to stretch my legs would worsen the pain in them considerably.  So, the only option left was to go on a cruise.  At first, I was very skeptical as I was certainly worried that the dizziness would worsen due to the movement of the ship.  However, as both my parents have been on a cruise before, and eased by concerns and anxieties about cruising as well as listing off a large number of benefits of going on a cruise versus other types of holiday.  And by agreeing then I would be able to choose a cruise that would allow me to fulfil my dreams of visiting a place I had wanted to for so long.

The beautiful city of Rome which I will soon be experiencing
The beautiful city of Rome which I will soon be experiencing

After mulling it over, I agreed and took the plunge by booking the cruise we are to depart on in a couple of weeks.  The countdown now is most certainly on and I am busily preparing for the cruise and purchasing new clothes and bits and pieces that I need to take with me such as sunglasses, hats and other holiday necessities.  Another necessity that I have to take is my wheelchair; due to the neurological condition I am unable to walk far and therefore will need it to use on excursions and around the ship so I will be able to enjoy everything I want to experience.  Granted, I never dreamt that if I ever got to visit Italy I would do so in a wheelchair but sometimes dreams do not turn out the way that we expected.  I have decided to pack some items that are my personal necessity items such as my iPad – before leaving I will download some films that I will be able to watch on the days where I may be feeling very unwell and am stuck in our cabin due to the severity of my symptoms.  This may not happen, of course, but I thought I would prepare for the possibility that it could happen.  I am planning to watch a film or two on the journey to Southampton in order to distract myself from the pain and trembling in my legs that has worsened recently and may also worsen whilst travelling in the car due to the lack of leg room.  A notebook of course is another item that I will be taking with me; an item that will be very useful in taking notes for the blog post that I will be writing when I return home.  And of course, no holiday would be complete without a camera to document the experience of travelling to new places for posterity.  For this, I am planning to take as many photographs as possible with my smartphone, and then I am planning to build a scrapbook of my cruise experience as something to look back on when I am having a bad day due to chronic illness.

This particular prompt also asks for tips for others regarding travelling with a chronic illness.  However, as I have mentioned at the beginning of this post, I have not travelled since being diagnosed with a neurological condition, or not taken a holiday since the symptoms associated with my condition has worsened.  Therefore, I would like to make this particular post interactive and ask my readers (aka YOU!) for their tips regarding travelling whilst living with a chronic illness?  What are some of the items I should be packing in my luggage?  What are some of your coping techniques when your symptoms flare whilst travelling?  Any tips that you can offer would be much appreciated and would love to hear others’ experiences of cruising with a chronic illness or even better a neurological condition.  So, please leave any tips and suggestions in the comment section below:

I look forward to writing a post about my holiday of a lifetime and sharing my experiences and tips that I may have found whilst travelling with a neurological condition.

Many of us living with chronic illnesses know that often it can rob us of our dreams and aspirations – often assuming that what we used to dream of achieving is no longer within our grasp.  However, this is often not the truth – what may be out of our grasp is the most conventional route of achieving a particular dream; but often when living with a chronic illness, we need to find another route to be able to achieve our dream.

A dream of mine has always been to visit the beautiful country of Italy.  In fact it is on my ‘Bucket List’ that we have complied at my social group which I attend. However, due to my problems with dizziness and vertigo, particularly affected by high ceilings  flying there would not be a good option for me as the majority of airports are very large and have high ceilings – using this transport option would mean that I would be extremely unwell even before getting to the desired destination!

 

Airports - large and high.  My idea of a nightmare!
Airports – large and high. My idea of a nightmare!

 

Another option would be travelling by a coach; which is one option in which my Mother and I were considering.  However, this was quickly dismissed after a recent trip to the cinema in which I was left in bad pain within my legs due to the cramped conditions, and therefore thought that travelling via coach for many hours would most likely result in severe pain.

Coaches don't offer a lot of leg room - and for me would leave me in pain
Coaches don’t offer a lot of leg room – and for me would leave me in pain

 

Therefore, the only option left to me is a cruise.  My parents went on one a couple of years ago and loved it – really could not recommend it enough.  Although it is only really my last option left to be able to visit Italy; there are however a lot to think about.  Such as the constant dizziness and balance problems.  Would going on a cruise possibly increase the severity of the dizziness, vertigo and balance issues.  People with vestibular disorders often have super sensitive balance – and although cruises have stabilisers and ‘healthy’ people report not feeling the motion of the cruise ship; a person with a vestibular however may feel the motion and be affected because of it.  On the other hand, my balance and dizziness are a result of a neurological disorder and therefore it is interesting to consider whether I would be affected by a cruise in the same way a person with a vestibular disorder would.

A Cruise - good or bad thing with a condition like mine?
A Cruise – good or bad thing with a condition like mine?

 

There are a lot of advantages of cruising for a person with a chronic illness; which really do appeal to me:

  • Cruise liners and the companies running them are very happy to accommodate for those with disabilities and chronic illnesses – if you tell them in advance what you need then they will happy to accommodate your specific requirements.  Or if they cannot themselves they will signpost you to places where you will be able to rent certain mobility aids, etc 
  • If like me, you are unable to determine when you will become unwell; symptoms appear with no warning then on a cruise you can simply head back to the cabin to have rest or a nap.  If you were on a conventional holiday and out on an excursion you would not be able to do so
  • With mobility problems like myself; cruise ships have plenty of elevators that you can use, and if you suddenly get tired, there are plenty of lounges, bars, restaurants or seats that you can plop yourself down on to take a break
  • When the cruise liner has reached a particular destination and has docked, if you are not up to go sight-seeing then you do not have to – you can just stay on the ship and relax!
  • Plenty to do and lots going on!  I personally like to be entertained and if I am up to it like lots to do – and cruises offer that.  Amenities often include theatres, cinema, spas, swimming pools, ice rinks, and lots more!

I am yet undecided whether I will eventually go on a cruise; there are many factors to consider, and my health being the biggest factor to consider.  Would a cruise be a good fit for a condition like mine?  One thing though, I would love something to really look forward to and be excited about – my future currently offers me more hospital appointments and the same old routine!

What are your thoughts?  Do you suffer with a chronic illness and like to travel?  What, in your opinion are the best types of holidays for those with chronic illness?  Any more advantages of a cruise?  Its disadvantages?

Please leave comments – would love to know your thoughts as ever!

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