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Tooting that Horn! What makes me awesome?

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nhbpm_daycount-29

Welcome to the penultimate day of the National Health Blog Post Month Challenge hosted by WEGO Health.  Every day during the month of November I will be writing a new blog post related to health and living with a chronic illness based on given prompts provided by WEGO Health.

Today’s prompt read:

Toot that Horn!  Want to hear a secret?  You’re awesome!  (It’s actually not even really a secret).  This is going to be hard for you, O Modest One, but you gotta give yourself props today!  Wrote three things you love about yourself – things you’re great at – or just want to share.  Don’t you dare signpost or undercut those self-compliments!

Apparently I'm awesome?
Apparently I’m awesome?

I will admit, I have struggled so much with this prompt.  I am not one for, tooting my horn so to speak, and struggle with making lists of what I love about myself; or about what I am good at.  I even tweeted about this, as I was so stuck:

A great friend of mine, Anya replied to this:

The next day, whilst checking my email, I came across an email from Anya, who came up with a list of things that make me awesome.  In the email, she writes:

  1. You always support and think of others even during your own tough days
  2. You always tweet kind things
  3. You always rise even after falling
  4. And you rise consistently well!
  5. You are dancing beautifully despite the relentless rain and storm

 

 

What do I think makes me awesome, the question asks?  Here are some that I finally managed to come up with!

  1. I think that I am considerate towards others; for example, even when I am not feeling well, or even when my legs are weak I will still complete chores around the house to lessen the amount that my Mum has to do around the house.  I regularly do the washing-up, when my health allows, even when the trembling is bad so my Mum, who has worked all day, doesn’t have to do it.
  2. Keeping up with the blog and other social media is pretty awesome!  And on top of that I am involved with several project such as Life 4 Living, Neuro Nula and Unseen Magazine.  I like to keep busy, and advocate of==for other people with chronic health conditions as well as raising awareness for neurological conditions.  You could say that I am helpful?
  3. I still remain positive despite living with a chronic illness, which is pretty awesome as all of you will know living with any illness is hard and difficult, especially during the tough times.  I have even designed my own ‘Positivity Board’ with little notes and positive sayings to look at when I am in bed due to illness, and to generally cheer me up when times get tough.
My Awesome 'Positivity Board'
My Awesome ‘Positivity Board’

Those are the things that are awesome about me – through my own eyes and those of a close friend!  Are there other things that we have missed, that make me awesome?  If you have any then please comment below, and make my day as well as giving me something lovely to read and remind myself when I am struggling or just generally having a bad day…

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In Chronic Illness

Exercising: When it is it too much? And Upcoming Celebration

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Hey Everyone

So, have been really good lately, and have gone on the new AeroPilates Machine nearly everyday – the minor day missed because I have been too unwell or have had other things going on so didn’t manage to ‘fit’ it in during my day.

It has mostly been going well, think have gotten to grips with most of the exercises which were difficult to start off with – and boy, can you feel it working!! However, I have found myself feeling extremely tired afterwards and with my legs feeling extremely weak, sometimes not even been able to get back up straight away afterwards. During a particular exercise, you are required to put your legs in these straps and to raise the legs 90° in the air, on doing this however I am finding that my legs jerks and shakes, similar to what happens when the doctors are checking my reflexes, it used to just happen with my left leg as it seems to be weaker but has just started happening with my right leg too, and have started seening it happening with my arms when doing some of the arm exercises.

Does this mean that my legs are starting to become weaker and my arms are beginning to become weak also?? Just great!! Now my Mum is telling me constantly not to overdo it on the AeroPilates but whilst I am on there I don’t feel particularly tired, so how am I supposed to tell when enough is enough?? To demonstrate how the AeroPilates machine works here is a video from YouTube with some of the exercises that can be done on the machine:

On a happier note, this week I will be celebrating my 26th Birthday – and whilst it is supposed to be a lovely celebration surrounded by friends, going out perhaps to a local nightclub or bar, I however will find myself alone for some of the day whilst Mum and Dad are at work. Having this kind of ‘disability’ I am finding it a struggle to find someway of celebrating, given my condition and how it affects me especially considering how it often leaves me feeling fatigued, extremely dizzy and with legs so weak I am unable to walk or stand for very long. I have however been invited to a local Resource Centre where I volunteer to celebrate my day – although it will mean having to get a taxi from my house to the centre and back again.

Yet, another disadvantage of having such a disability – having to really think things through before going somewhere and planning the journey and all that comes with it instead of being able to just go out and do.

 

 

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