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Fiction. Whether it be through books, television, or film, it allows us to inhabit a world away from reality. To reside, and experience life through the eyes of fictional characters beyond the existence of the chronic illness.

The ability to escape into fictional worlds away from the grim reality of pain and illness is a welcome relief. However, as this reality is isolating, we often crave for fiction to become a mirror; one that reflects our feelings and experience and the truth of living with chronic illness. To spend time with characters with whom we can relate. Those that make us feel less alone, in a world that makes us feel alone in our struggles.

"We often crave for fiction to become a mirror; one that reflects our feelings and experience and the truth of living with chronic illness." Share on X

Lack of Representation of Chronic Illness in Books and Mainstream Television

The problem, however, is that there is an evident lack of representation of chronic illness in books and mainstream television. The portrayals that do exist do so at the end of two opposing spectrums. Either they paint the very worst-case scenario or a tear-jerking account of triumph over adversity and sugary optimism. There seem to be few realistic depictions of the stark, painful truth of life with a life-long condition. Those living with such afflictions either portrayed as brave and inspiring. Or otherwise painted as being fragile and in need of taking care of by others who are more capable.

"There seem to be few realistic depictions of the stark, painful truth of life with a life-long condition. Those living with such afflictions either portrayed as inspiring. Or they are otherwise painted as being fragile." Share on X

Sadly, there is room for improvement regarding the representation of chronic illness on television. Firstly, there seems to be a distinct lack of characters exhibiting chronic conditions on mainstream television. When there are, however, it does so with little realism of the truth of what living with illness entails. When a television series announces a storyline regarding chronic illness, is met with interest and anticipation. Very often, however, it turns quickly to disappointment. Such storylines hold great promise, at first, successful at raising awareness of the issues portrayed. However, as the storyline ends, there is very little continuation surrounding illness and its impact.

"Storylines featuring chronic illness at first are successful at raising awareness, but often there is very little continuation surrounding illness and its enduring impact." Share on X

Illness Remains Invisible and Ignored in Fiction

Chronic illness remains invisible and ignored in its representation in fiction. In a way implying that those struggling with chronic illness are not tragic enough to be seen or their voices heard. We want content that can guide us, and give us direction on how to live well with chronic illness. We want fictional characters to whom we can look up to and learn how not to be dictated by disease.

"Chronic illness remains invisible and ignored in its representation in fiction. In a way implying that those struggling with such issues are not tragic enough to be seen or their voices heard." Share on X

However, that is not to say that we cannot relate to or find lessons within fiction that do not feature chronic illness. The following are books and television characters that have taught me about how to cope with a neurological disorder.

"These are the books and fictional television characters that, although they do not feature chronic illness, have still taught me about how to cope with living with a neurological disorder." Share on X

What Can Fiction Teach Us About Living With Chronic Illness?

Little Women: We gain strength and resilience from the storms in life

A classic book that has been my favourite reading material since I first read it as a young child. A book that resonates, as the four March sisters navigate their way from childhood to become young women. Each aware of their strengths and weaknesses and make their tumultuous journey toward womanhood to become the best version of themselves.

There is one quote that as someone living with the adversity from illness has continued to resonate.

The lesson of the growth and resilience gained from living through the painful times of living with chronic illness

The quote is apt for someone navigating an uncertain future.  Living with chronic illness, we experience many ups and downs, thrust into flares and severe exacerbations in our symptoms.  This quote reminds me, however, of the growth and resilience gained from the difficult and painful moments in life.  Enduring a flare as distressing and painful as it is, it also helps develop improved coping skills in time for the next one. 

"'Little Women' has taught me the growth and resilience gained from experiencing difficult and painful moments as a result of chronic illness. It's continued presence helping to improve useful coping strategies." Share on X

Les Miserables: There will always be a brighter tomorrow

Most famously, the longest-running musical ever, it is, famously based upon the book written by Victor Hugo.  A story of love, loss, and revolution, the characters struggle to overcome great adversity.  A story in which the characters begin to lose hope due to the struggles they endure. 

The lesson of the hope for a brighter and happier tomorrow despite the darkness and pain of living with chronic illness

When facing continuing battles and worsening symptoms, it is too easy to lose hope.  However, there is one quote that inspires, declaring that tomorrow is a new day and in which holds new beginnings. The quote is a reminder that no matter how hard the struggles we face, there is a chance for a better tomorrow.

"Despite the gloomy tone of 'Les Miserables' it is still one that inspires hope for a brighter and happier tomorrow." Share on X

Harry Potter Series: Hope and positivity can help bring us out of the darkness

Like for many, the Harry Potter series of books became a staple of my adolescence and young adulthood. These books delighted both children and adults alike, comprising many life lessons within its pages.

The lesson that although we cannot control what happens to us, we can choose on how we respond

Living with the difficulties and limitations illness entails, it can so easy to succumb to the darkness; remaining there when we are no longer able to cope with the pain. However, Dumbledore reminds us that we all contain the power to bring ourselves out of the darkness with a spark of hope. Although we cannot always control what happens to us, we can choose how we respond to circumstances beyond our control.

Of course, these books also taught us to believe in magic!

"Harry Potter contains many powerful and profound lessons. As someone living with chronic illness, Dumbledore has taught me that although we cannot control what happens to us, we do have the choice on how we respond." Share on X

Oliver Queen (Arrow): You are stronger than you believe

It can be hard to find anything relatable in characters from comic books, or the ever-popular superhero shows.  Featuring characters who can swing above rooftops, or can fly or travel at the speed of light, makes these fictional worlds unrealistic.  What makes Oliver Queen, or the Green Arrow interesting is that he is one of the few superheroes without any superpowers.  And a common thread in the origin stories of superheroes is that with suffering comes an opportunity to learn and be better. 

As someone living with chronic illness, it can be challenging to relate with such characters. Unlike the repercussion of their crisis, we do not gain superhuman powers or abilities. The gift of the suffering of illness is the awareness that we are stronger and more resilient than we ever believed we could be. Living with the plight of debilitating symptoms, we do not know how strong we are until we have no other choice but to be. Oliver learned this during his own five years in hell. As without inner strength, he would not have survived, and not becoming a hero as a result. 

"Living with the plight of debilitating symptoms, we do not know how strong we are until we have no other choice but to be. Something Oliver Queen learned this during his own five years in hell." Share on X

Temperance Brennan (Bones): Always be unapologetically you

Crime dramas are my favourite genre and continue to be fascinated with the methods used to provide justice for victims.  One of my favourite procedural shows is Bones. ‘Bones’ is the nickname of Temperance Brennan, a forensic anthropologist who examines bones to determine how a person died and by whom.  I found her to be a truly inspiring character, impressed by her brilliance.

In one episode, her partner Booth takes a photograph of her weeping over a dead body thanks to pregnancy hormones.  When Booth dismisses it as normal, she protests in her usual emphatic fashion that “I’m not normal, I’m extraordinary.” 

It’s a beautiful reminder that we should not apologise for who we are. And that we should celebrate everything that makes us the unique individual we are.  For years, I felt ashamed of the person I am; the person illness made me. But, Brennan and all her quirks teach us to celebrate who we are unapologetically.

"For years, I felt ashamed of the person I am; the person illness made me. But, Temperance Brennan and all her quirks teach us to celebrate who we are unapologetically." Share on X

Brennan is aware of her worth and not ashamed to boast of her best qualities and achievements. Maybe we could all take a leaf out of her book!

Jane Doe/Remi/Alice Kruger (Blindspot): We do not have to be defined by what happens to us

When we first meet Jane, she is crawling out of a duffel bag in the middle of Times Square. As she emerges, she is completely naked apart from the intricate tattoos that cover her whole body. Suffering from drug-induced amnesia has taken away Jane’s knowledge of herself and everything she once knew.

When I first watched the pilot episode, I found that I resonated with Jane. When diagnosed with a life-long condition, there are many unknowns and questions to navigate. Just like Jane Doe. Through the course of the series, Jane begins to find herself despite her lack of memories. Jane even becomes a part of the FBI team investigating her and the tattoos that points them towards criminal investigations.

The show reminds us that we do not have to be defined by the significant life-changing experiences that we face. The story is a lesson that we can choose not to be defined by chronic illness. There is much more to us beyond being ill. Something which Jane herself learns when she discovers new abilities which include fluency in several languages and a talent for hand to hand combat. Instead, we can forge our chosen path in life. Just like Jane, we can choose the person we want to be, instead of being determined by illness.

"'Blindspot' reminds us that we do not have to be defined by the significant life-changing experience that we face. It is a lesson that we can choose not to be defined by chronic illness." Share on X

I would love to hear your thoughts; what have you learned from a fictional book or characters?

For the past few weeks, I have unfortunately been experiencing a severe flare in symptoms.  Although the symptoms I live with are constant, however, I experience blocks of time in which these symptoms worsen causing much pain and suffering.

Pain, trembling, dizziness and especially fatigue have all been particularly acute of late.  Often I have been unable to do much at all, with the pain and trembling in the legs shackling me to my bed due to difficulties with getting around, even in the house.  Crippling fatigue has also confined me to rest in bed on numerous occasions especially after being out of the house or doing chores around the house.

And it’s in these moments, being incapacitated by the illness that I am unable to do much more than just lie on my bed and entertain myself with a light or comforting book.  But more often than not, however, I have been distracting my mind from the pain and other symptoms with a box-set binge of one of my favourite television programmes.

[Tweet “These are my favourite boxsets to binge-watch when the pain and other symptoms are at their worst.”]

In this post, I thought I would share some of my favourite box sets that have recently helped me into a chronically (ill) induced boxset binge.

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Bones
Anyone who knows me will know that I am a huge fan of procedural crime dramas, and Bones has to be one of my all-time favourite shows in this genre.
‘Bones’ centres around the relationship between forensic anthropologist Dr. Temperence Brennan and Special Agent Seeley Booth of the FBI whom together combine their skill and expertise to solve murders using evidence recovered from dead bodies.

“Bones” is the nickname given to Dr. Brennan who heads up the team of forensic scientists of the Jeffersonian Institue (based upon the real-life Smithsonian Institue).  As the show is based on the character created by real-life forensic anthropologist Kathy Reichs (and who is also an executive producer on the TV series) the science and techniques used adds to the show’s realism and authenticity.  Alongside murder inquiries, the show also explores the relationships and private lives of the characters.

Not only is the science of the show interesting and compelling but the writers of the show beautifully write engaging and relatable characters whom you can’t help but fall in love with, especially the show’s protagonist ‘Bones’ whose directness and clumsy demeanor makes her both hilarious and endearing to watch.  Also, what I love about the show is its ability to inject humour seamlessly alongside the horror and gore of its depictions of its murders and dead bodies.
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Blindspot
“Jane Doe” wakes up stuffed inside a duffel bag in the middle of Times Square, naked, unaware of her own identity and covered in strange tattoos covering most of her body.  And it’s this enigmatic twist that makes it so different from any other police drama before or since.

The FBI, headed by Special Agent Kurt Weller, whose name also appears on the back of this mysterious tattooed woman, realises the tattoos are much like a treasure map and when decoded reveals clues to crimes and instances of government corruption.  Also while trying to discover Jane Doe’s real identity, and who sent her to the FBI and why.

If you love dramas that make you think, then this is one to put on your list.  Once you start to watch you cannot help be instantly intrigued with these beautiful and ornate and tattoos as well as the methods used to uncover the messages behind them.  As the series develops, the momentum builds closer towards a shocking and dramatic conclusion, raising more questions than it actually answered, and brilliantly introducing new avenues for future series to explore.  Everything about this series really impressed me, but the standout performance came from Jaimie Alexander as ‘Jane Doe’ who although excelled at the action stunts it was the vulnerability she showed portraying a woman whose entire identity had been erased that made it such a compelling watch.  A series I could happily watch again and again!

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Strike Back
I wouldn’t say that I am a huge fan of action dramas, but Strike Back has to be the one exception and one I can happily watch over and over again.  I’ve even been known to have come to the end of the entire series of the show and then immediately go back and watch it all over again.  The original series of Strike Back was adapted from a novel written by former soldier Chris Ryan and starred Richard Armitage.  John Porter is a disgraced soldier recruited by a secret branch of the British military to travel around the globe in the attempt to stop major global threats while his boss does his best to cover up a mistake from his past.

It was a solid series, however, Strike Back really came into its own during its second outing with the introduction of soldiers, Sgt Scott and Sgt Stonebridge, two leads who share amazing chemistry, and rival any of the best television or film comedy duos. They are engaging, and a delight to watch, and the banter they share is really what makes the show so fun and entertaining.  The one-liners between the two are hilarious, and as it’s a show I watch so of, I am even able to quote them!  But be warned, throughout all of the series there are many instances of explicit language as well as gratuitous sex and nudity.  Certainly not something I will watch in front of my Dad!

But what also makes the show so brilliant is the high octane drama and action.  The stunts are both impressive, and looks incredibly realistic and what the show will be most remembered for.  Although the action is what mainly drives the show, I also enjoyed the emotionally driven storylines, examining the tortured psyches of the soldiers and the moral quandaries that they are forced to confront in their line of work.  It was great to love a show that seemed fresh and new at the beginning of each new series, with ever-evolving characters and brilliantly complex storylines, hunting new enemies that threaten not only the UK but it’s political and military allies.  The episodes are so intense and exciting it’s hard not to get carried away and watch several episodes in one sitting!
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Gavin and Stacey
Written by friends Ruth Jones and now very famous James Corden, Gavin and Stacey tell the story of the eponymous characters; one a boy living with his parent in Essex and Stacey, a young woman from Barry, a town not very far from where I live!  They navigate their love affair alongside their best friends Nessa and Smithy, who although they seemingly hate each they keep sharing romantic trysts themselves!
The show is absolutely hilarious, and it never fails to make me belly-laugh no matter how many times I have watched the episodes!  A great box set to watch when feeling down, feeling the effects of living with a neurological condition.

Other Notable Mentions:

Grey’s Anatomy – it’s fun, addictive and beautifully written with strong and relatable characters that despite their flaws you can’t help but love
Criminal Minds – as someone with a psychology degree, I find their abilities to get inside the minds of serial killers fascinating
Ghost Whisperer – Jennifer Love Hewitt is absolutely compelling to watch as reluctant medium Melinda Gordon.  Each episode is so emotional to watch and never feels to leave you with tears in your eyes
Designated Survivor (on Netflix UK) – with elements of 24 and The West Wing, this show is undeniably intriguing and also complicated at times.  Tom Kirkland (played by Keifer Sutherland) on the eve of the State of the  Union becomes the President of the United States after a catastrophic explosion claims the lives of the President and everyone in his line of succession.  It’s absolutely addictive, and all 21 episodes are now immediately at your fingertips making it perfect binge-worthy material.

I always love to discover new box sets to watch on those days which leave me incapacitated by my symptoms so I would love to hear your favourite box sets and any recommendations on what to watch next!

Leave your suggestions in the comments below!

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