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Chronic Illness

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Welcome to the eleventh day of the National Health Blog Post Month Challenge hosted by WEGO Health.   Every day during the month of November I will be writing a new blog post related to health and living with a chronic illness based on given prompts provided by WEGO Health.

Today’s prompt reads:

Veteran’s Day: For all our veterans and family members, we celebrate this day because it marks the end of WWI, at the 11th hour on the 11th day of the 11th month.  Do you have a task you complete every day at the same time that helps with your chronic illness?  How long have you been doing this, how has it helped?

I cannot say that I complete a task every day, at the same time which helps with my chronic illness.  In my personal experience, no two days are exactly the same when living with a chronic illness.  In addition, life with a chronic illness can instantly change within a blink of an eye; one minute the symptoms are in the background, calm…and the next minute they are wreaking havoc amongst your body and impacting upon your life and your routines.  For example, very often the neurological condition that I live with causes such severe weakness in the legs and intense dizziness that I am unable to get out of bed, and even if I did have task that I complete every day at the same time, I could not very well leave my bed to complete the task.

 

Keeping to a routine can be very difficult when living with a chronic illness
Keeping to a routine can be very difficult when living with a chronic illness

 

Making plans, whilst living with a chronic illness can also prove be very difficult as because every day is so very different, we can never tell how we will feel on that particular day.  Do we dare to book tickets for a concert or play just in case we are unable to attend?  We are ruled by our bodies and as a result we are governed by our conditions and its symptoms; dizziness, pain, weakness or overwhelming fatigue may result in a person with a chronic illness to cancel plans, or cease our routines to rest and recuperate.

 

Cancelling plans can be as disappointing to us as it is for our friends and family...
Cancelling plans can be as disappointing to us as it is for our friends and family…

 

Recently, I have even been finding that the coping strategies that I do have in place regarding the dizziness, can work one day but as the intensity of the dizziness may be worse the next, these coping strategies are not proving to be effective.  So, to conclude, living with chronic illness can vary from day-to-day; and even from hour to hour or in certain cases from minute to minute, and although we all would like little tasks and routines to complete every day to make us feel better, our illnesses can prevent us from completing them, ruining all of our plans and routines.  Certainly, life with chronic illness is never the same from day-to-day….

 

At the end of this post, as it is Remembrance Day, I would like the opportunity to pay tribute to every member of the armed forces, past and present;  all of their hard work and sacrifices that they make in serving our country and allowing us the freedom that we are so fortunate to have today.  You are all heroes and we will remember all those from all the wars that were not so fortunate to return home to loved ones.  I certainly will be wearing my poppy with pride today…

 

Wearing my Poppy with pride today! #lestweforget
Wearing my Poppy with pride today! #lestweforget

 

As always would love to hear your thoughts and views!  Do you have any strict routines you adhere to when dealing with chronic illness?  Does it help?  Please leave comments below!

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Welcome to the tenth day of the National Health Blog Post Month Challenge hosted by WEGO Health.   Every day during the month of November I will be writing a new blog post related to health and living with a chronic illness based on given prompts provided by WEGO Health.

Today’s prompt reads:

Alternative Medicine: Write about alternative treatments and regimens and tell us how you feel about them.  What do you support?  What is crazy? Have you used any? 

As my condition is neurological, and the dizziness is looking like it is being caused by a problem between the signals between my brain and eyes, then I am not so sure that alternative medicines would really work in my particular case.  I would not say that I think the idea of any alternative therapies however is ridiculous; if a person finds something that works for them and helps them to feel better in a world of chronic pain or illness, whether it be conventional medicine or alternative medicine than I think a person should be free to choose whatever works best for them.

Admittedly, when the anxiety and dizziness first started to become a major problem and an obstacle that impacted on my everyday life, I did try Chinese herbal medicine after someone recommended it to by Mum – sadly it didn’t work for me, but it wouldn’t stop me from trying it again for some other ailment or even recommending it to someone else for them to try – after all, our bodies are different from person to person and one treatment which works for person A, will not however work for person B.  I did however find that aromatherapy helped somewhat with the anxiety, and using lavender on a regular basis helped me feel calmer and less nauseous. I have just bought a little wheat bag and have hung it my bed to help send me to sleep, even when the dizziness and pain is stopping me from doing so, and has found that it has been doing the trick!

 

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My little lavender what bag – hung by my bed and complete with a little dachshund to remind me of Honey

 

Last week, I had a flare of my IBS symptoms, with bad cramping in my stomach, and a great friend suggested drinking peppermint tea.  I found that it instantly calmed my IBS symptoms, and the cramping instantly eased.  So although alternative therapies may not solve the entire set of symptoms caused by my neurological disorder, at least I have found something to help during flares of IBS.

 

Peppermint tea does wonders for my IBS symptoms
Peppermint tea does wonders for my IBS symptoms

 

As a lot of you may know that my symptoms such as the pain and trembling in my legs as well as the dizziness and vertigo has started becoming worse of late, and a few people have suggested alternative treatments such as seeing a Chiropractor or perhaps even attempting acupuncture.  Although I am not closed off from trying alternative forms of treatment, I think one of the worries of such treatments is the cost.  In Wales, receiving prescriptions is free, however alternative treatments are not offered on the NHS, and can be very costly.  For example, a friend of mine was spending approximately £90 a week on sessions with a Chiropractor, and perhaps one of the worries is the financial implications on using such treatments especially if they fail to work.

Next year, I am going on a cruise with my parents and am aware that they offer treatments such as acupuncture on board the ship that we are going on; perhaps I will give it a try – after all, isn’t one of the benefits of going on holiday is to try new experiences?

But for now, perhaps I shall stick to my own personal alternative regimens that for most part ease my symptoms, such as wearing a hat when out in my wheelchair.  I have found doing this ease the dizziness somewhat; blocking the visual stimuli that can make the dizziness worse, or even trigger an episode of vertigo.

One thing that living with chronic illness has taught me is that whatever helps us live with such debilitating symptoms or even eases them, then we should take full advantage of, however crazy they may appear or even what other people think…

Would love to hear your thoughts on this subject!  Have you tried any unconventional or alternative treatments in your quest to feel normal in the chronically ill world?  Feel free to post your stories and comments below…

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Welcome to the ninth day of the National Health Blog Post Month hosted by WEGO Health.    Every day during the month of November I will be writing a new blog post related to health and living with a chronic illness based on given prompts provided by WEGO Health.

Today’s prompt reads…

Just admit it: It’s taboo, write about something that people do but don’t like to talk about or won’t admit to doing.  Don’t worry we won’t tell anyone 😉

Okay, so I am going to divulge a big secret of mine.  I suffer from a condition called trichotillomania.  Trichotillomania is the compulsion urge to pull out one’s own hair.  I have suffered from this condition since my early teens, and is not something I admit to doing or have even discussed with anyone.  You see, ever since my early teens; when the dizziness started getting much more frequent and intense, and as a result it triggered an anxiety disorder.  At the same time, I was going through a hard time at school, where I was bullied and ostracised by my peers.  As someone who rarely talks about what is on their mind, or problems and instead bottles them up, I found comfort and relief from plucking hairs from my legs, arms or eyebrows.  At this time, I didn’t know what was happening; I was finding it so difficult to cope with both the dizziness, anxiety and depression that I was suffering, and I had no other coping mechanisms that I developed this compulsion to pull my own hair out.

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My hair is very fine, so I couldn’t pull hair from my head as people would soon notice, so I began pulling hairs from my arms, legs and eyebrows.  It’s my shameful secret – I still do it sometimes now when I am struggling with my condition and during difficult times where I am finding it difficult to cope.

This condition is very common, usually amongst teenagers and young adults, and also more common in girls than boys.  However, it is often a taboo subject and not often talked about.  Perhaps as it often also causes guilt and shame amongst sufferers of trichotillomania.  I know that guilt is something that I feel after I have pulled hairs out for a period of time.

I hope that perhaps by sharing my secret and opening up about my compulsion to pull my hair out will help people who may be doing the same thing.  For support, you can try these websites that provide further information:

US – Trichotillomania Learning Centre: http://www.trich.org/

UK – Trichotillomania Support Online – http://www.trichotillomania.co.uk/index.html

Trichotillomania Support on Facebook – https://www.facebook.com/TrichotillomaniaSupport

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Welcome to the eighth day of the National Health Blog Post Month Challenge hosted by WEGO Health.  Every day during the month of November I will be writing a new blog post related to health and living with a chronic illness based upon given prompts provided by WEGO Health.

Today’s prompt reads:

Favourite Fridays.  Make a list of 3 favourite quotes

I absolutely adore this prompt as I am a lover of positive quotations; they are uplifting and a lovely reminder of what good there is still in the world when illness seems to get in the way of enjoying life.  In fact, I am such a lover of such positive quotes that I have started my own positivity board in my bedroom which has some positive quotes, which I love.  So, what are my 3 favourite quotes?

My Top 3 favourite quotes:

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And here is my 'Positivity Board'
And here is my ‘Positivity Board’

 

 

What are your favourite quotes?  Fee free to comment below…

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Welcome to the seventh day of the National Health Blog Post Month Challenge hosted by WEGO Health.  Every day during the month of November I will be writing a new blog post related to health and living with a chronic illness based upon given prompts provided by WEGO Health.

Today’s prompt reads:

Mary Poppins Carpet Bag: Write about what’s in your bag/purse/backpack every day and why!

This prompts come on a day where I have a hospital appointment – this afternoon I have a specialist appointment with a consultant in Audiovestibular Medicine.  So, given today’s prompt I decided to change it slightly and instead write about everything that I have in my bag when I attend various hospital appointments.  I don’t know about you, but I tend to get anxious and jittery attending hospital appointments, even after so many visits!  So I like to have plenty in my bag to keep me occupied and distracted when waiting to see the doctor.  Sitting in a hospital waiting room is in itself a waiting game.  So here is the run down on what I keep in my bag for appointment days:

  • The appointment letter: Very important to take this as obviously it contains all the vital information regarding the appointment such as the location, time and the doctor you are seeing.  More often than not the receptionist checks the letter for your information so is important to take the appointment letter with you to the hospital
  • Other Medical Information: At appointments they always ask you for certain information such as the frequency of the symptoms; medications you are taking; questions about medical history so I would advise to keep a notebook with all of this information written down in it, to take with you to such appointments
  • Puzzle Books: I have a couple of puzzle books, with Sudoku puzzles and crossword puzzles in them.  I usually get these out of my comfort box when I am stuck in bed as they help distract me from the pain and dizziness as well as help pass the time away, so often will take a book or two to complete whilst I am waiting.
  • Mobile Phone and iPad: Obviously, I am not able to make or receive calls whilst at the hospital but the phone itself becomes an entertainment centre, with everything I need to occupy me during the often long wait to been seen by the consultant.  With the phone I am able to check Facebook and Twitter, exchange messages with friends to help me through the anxiety, and also play different games to distract me from the dizziness.  The iPad enables me to listen to music or even watch a favourite film or television programme to make waiting much more enjoyable!
  • My ‘Little Book of Strength; – I am a big fan of the ‘Itty Bitty Book Company’.  They are a small company who sell handmade little book of quotes whether it be motivational quotes, positive quotes or quotes to gain strength from.  They also come with coloured beads attached to them, which make them really beautiful little gifts and keepsakes.  I love the ‘Itty Bitty Book of Strength’ and read all of the positive quotes when I am struggling because of my condition or just having a bad day. And I take them with me to hospital appointments to give me strength and help keep me calm
  • Mints and a bottle of water: My condition and the dizziness causes a lot of nausea; as well as this my mouth is always dry due to side effects of my medication so the mints and water help with this
  • Hat: I always carry this around in a little pocket in one of many Kipling bags as I have found that wearing a hat and minimising a lot of the stimuli surrounding me does help calm the dizziness down somewhat and is one of my main coping strategies when it gets bad
  • Purse: Always carry a purse as there are always shops at hospitals, and enables me to buy a drink or a snack during my wait.  Oh, and helps towards the car park fees, of course!

 

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My Comfort Item

What do you carry in your bag/purse/backpack when you visit the doctors’ or hospital?  Feel free to add your thoughts and comments below!

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