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Chronic Illness

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Thank you so much to Tasha M. from Pain Warrior Code for nominating me for the Mystery Blogger Award!  I am so honoured and such an admirer of her blog for the uplifting positivity and inspiration for those battling with chronic pain every day.

What is Mystery Blogger Award? 

“This is an award for amazing bloggers with indigenous posts.  Their blog not only captivates; it inspires and motivates.  They are one of the best out there, and they deserve every recognition they get.  This award is also for bloggers who find fun and inspiration in blogging and they do it with so much love and passion.” – Okoto Enigma

Mystery Blogger Award

Rules

  • Thank whoever nominated you and include a link to their blog
  • Tell your readers 3 things about yourself
  • Nominate 10-20 bloggers you feel deserve the award
  • Answer the questions from the person who nominated you
  • Ask your nominees 5 questions of your choice with one weird or funny one
  • Notify your nominees by commenting on their blog

3 Things About Myself 

  1. I am such a big fan of crime dramas and watch so much of this particular genre!  I was especially a huge fan of the British crime drama Wire in the Blood (and inspired by the brilliant Tony Hill novels by Val McDermid) that it was one of the reasons why I wanted to study Psychology at university!
  2. I gained a BSc (2:1) in Psychology and wanted to study further, specialising in Clinical Psychology but unfortunately was unable to because of health problems
  3. My favourite form of ultimate self-care is a trip to a spa.  It may not always help ease the persistent symptoms that affect my body, but still, find the peace and tranquillity of a spa incredibly relaxing that it’s hard not to come away feeling better than when you first walked in.

My nominees for this award are; 

Answers to Questions from Pain Warrior Code:

  1. What made you want to start blogging? I wanted an outlet for my frustration that the symptoms caused by my condition affect me, but more than that I also wanted to educate and raise awareness of neurological disorders as well as invisible illnesses in general.
  2. As this award is about blogs that inspire and motivates – do you as a nominee have a mantra, proverb or saying that you live by? I’ve shared this before, but I adore a quote from one of my favourite authors, Louisa May Alcott, “I am not afraid of storms for I’m learning how to sail my ship.”  It just reminds me that the hardships that my condition creates only help to deepen the strength and resilience that I will need tomorrow and for any future storms that life with a neurological condition causes to be.
  3. If you had to choose one meal that you had to eat every day for a month (without any health complications), what would it be?  Tough one, there are so many meals that I love, even though I may not always feel up to eating, but I am partial to a pizza! My favourite is one topped with mozzarella and basil pesto! Delicious!
  4. What is your favourite hobby/pastime? It has to be reading, as someone living with constant pain as well as other unpleasant symptoms, I love the escapism that reading a novel provides, escaping to other countries, or other times!  In my imagination, I can do anything and go anywhere that I choose; freedom that living with illness impedes.
  5. What’s the best/worst practical joke that you’ve played on someone or that was played on you? Genuinely cannot think of anything that has happened to me or tricks that I’ve played on others.  Although I am incredibly jumpy and so hate when people jump out unexpectedly!

My questions for my nominees: 

  1. If you were stuck on a deserted island but could have any 3 books with you, which books would you pick?
  2. What are your favourite song lyrics? Why?
  3. What TV show are you currently binge-watching, or the last show you binge-watched? Would you recommend it?
  4. If you could travel back in time to any point in history, where you would choose to visit?
  5. Imagine if you had to become a dog, which breed of dog would you be and why?
I look forward to hearing your answers!
Congratulations all!

A few weeks ago I was contacted by a friend about an exciting community project in Cornwall entitled ‘We Are Enough; The Creative Yarn Bomb of Love.’  Its ethos is to raise awareness about mental health; to bring people together to share experiences and encourage self-expression through creativity.  All forms of creativity are encouraged such as knitting, crocheting, writing, painting or photography while also spreading positivity and kindness.  A project to help people who may lack self-worth to know that we are all good enough just as we are.

The project will culminate in May 2019 to coincide with World Mental Health Day with a massive yarn bombing, whereby spaces across Cornwall, its structures and objects will be transformed, covered with decorative knitted and crocheted material to promote and raise awareness about mental health. You can click here to find out more about the We Are Enough project.

My friend asked if I somehow wanted to get involved in the We Are Enough and I, of course, said yes.  It is a brilliant project, and I know so many people who have had experience of not feeling good enough and plagued with self-doubt and suffering low self-esteem as a result.  Due to poor manual dexterity due to the Functional Neurological Disorder I suffer from, I am unable to crochet and knit, so I thought instead I would put pen to paper (or fingers to keyboard) and share my own experiences of not feeling good enough…

I suppose I have had the feeling of not being good enough for a long time now; for far too long that I am no longer able to remember exactly when these negative self-beliefs began.

These beliefs became more evident when the symptoms become a more significant part of my life, mainly the dizziness and the problems they caused with being able to handle being in certain places such as buildings with high ceilings, for example.  I hated these symptoms and the limitations they placed in my life, being able to enjoy an outing to the cinema became increasingly difficult due to the severity of the dizziness and vertigo.  I didn’t hate these symptoms (and later the neurological condition) just because of the limitations, but also how these set me apart from everyone else.

[Tweet “I not only hate the limitations, but also how the symptoms set me apart from everyone else.”]

Being different and standing out from everyone else can be very lonely and isolating
Standing out from everyone else can be incredibly lonely and isolating…very often leading to feeling not good enough

These symptoms began in early childhood and stayed with me throughout my adolescence and beyond.  A time when any differences that set us apart from everyone else are more apparent, especially to those within our peer groups.  And unfortunately, these differences can lead to bullying and ostracisation, which is what I frequently experienced throughout my school years, especially during secondary school.

In my experience, it is one thing to think negative and demeaning judgments about yourself, but to hear them from other people only reinforces these beliefs and are once again enforced on this perceptual cycle of not feeling good enough. And every time we are ignored or not given an invitation on the latest night out, or party once again reinforces to ourselves that we are not good enough.  And as this perceptual cycle repeats, again and again, it is no longer a belief, but becomes our truth.

[Tweet “Continuously hearing negative judgements about yourself enforces the belief we are not good enough.”]

We can feel defined by our imperfections, whether they may be physical imperfections such as scars, or a perceived character flaw or like me, suffering from a medical condition that makes you different.  So much so, that we are unable to recognise the positive attributes that make us stand out, and unique to those who love us unconditionally.  In the past, I’ve gone on numerous courses, many of which worked on increasing self-confidence and self-esteem and part of this was to write a list of what we liked about ourselves.  Asking other people who are close to me, they could list many things that they liked about me. However, I struggled to come with one single item on the blank piece of paper.

Even now at age 32, those feelings of not being good enough has followed me through those turbulent years of adolescence and into adulthood.  At university, much like my school days, I lacked confidence, continually doubting my abilities, never satisfied that my latest essay was ever good enough, or convincing myself that I failed the exam I just came out of, although I never had any evidence to support these assumptions.

In today’s society, we are taught the value of being productive, and as such as someone living with a long-term neurological condition and unable to work once again reinforces this belief that I am not good enough, somehow unworthy of having beautiful things or the opportunity of good things happening to me.

I am imperfect, and the condition that is now a constant part of my daily life is somehow my most significant imperfection.   An imperfection that has caused significant cracks, and weakening every part of my life.  But, have you heard of the term Kintsugi?  Well, kintsugi is the Japanese art of repairing broken pottery.  Broken objects, such as pottery are often repaired with gold.  These imperfections or flaws are seen as a unique piece of the object’s history and which adds to its beauty.

kitsungi an art form that turns brokeness into beauty
The Japanese art form known as kintsugi turns brokenness into beauty

Beautiful isn’t it?  But why do we not see imperfections and flaws ourselves in the same way – as something as unique and adds to our beauty instead of something to be ashamed of, doing our best to hide them from others.  To see something that sets us apart as something to celebrate and be proud.  Yes, the symptoms of the neurological condition that I live with may make doing some activities such as going to the cinema as difficult but isn’t it the fact that I have refused to let it stop me from doing certain things that is a sign of my strength and what should be celebrated?

[Tweet “Perfection is a social construct and not a reality; no one is perfect.”]

The fact is that perfection is a social construct and not a reality; no one is perfect. We all have flaws and imperfections whether they may be real or imagined, but what does matter is what we believe about them.  We can tend to give these flaws with more power and importance than they warrant, believing that our imperfections somehow makes us less whole.  Less worthy. But in truth, we are all good enough just as we are.  And our flaws and imperfections are gold-filled cracks that make us unique and adds to our beauty, and not which diminishes our light within.

[Tweet “We believe that our imperfections somehow makes us less whole. Less worthy.”]

Remember, you are good enough just as you are.

To find out how you can get involved in the We Are Enough project from your own home too, go to QuietConnections.co.uk/We-Are-Enough/

[Tweet “In truth, we are all good enough just as we are.”]

Thank you again to Robert (A 30 Minute Life) and Jen (Tripping Through Treacle) for nominating me for this incredibly uplifting and inspiring quote challenge! The written word has the power to uplift and inspire, and can help us to remain resilient during the darkest times. This challenge is a perfect chance to remind me of so many of the beautiful quotes that can help to turn on the light when times are darkest.

The rules of this challenge are as follows:

  • Thank the person who nominated you
  • Post a quote for 3 consecutive days (1 quote for each day)
  • Share why this quote appeals to you
  • Nominate 3 different bloggers for each day

And the final quote for this challenge is:

[Tweet “Everyday may not be good, but there’s something good in every day”]

The quote again is one of my favourites and one I am continually reminding myself of, on the many rough days that I experience because of chronic illness and chronic pain, the two constant companions in my life.  On these dreadful days, days where we are unable to see the light at the end of the tunnel, it is easy to forget the many pleasant things that make up our life away from constant illness and pain.

At the end of these crummy days, it is so easy just to write off this day as terrible but in my experience, our days are never just wholly bad or good.  There is always something to be thankful, every day there is something good, as small as it may be, in every single day, no matter how horrendous we may have felt.

That is why the above quote appeals to me and is vital in my everyday life; it makes me appreciate the small, amazing moments in my life amidst even the bad.

My nominees for today are:

Thank you so much again to Robert (A 30 Minute Life) and Jen (Tripping Through Treacle) for both nominating me for this quote challenge! The written word has the power to uplift and inspire, and can help us to remain resilient during the darkest times. This challenge is a perfect chance to remind me of so many of the beautiful quotes that can help to turn on the light when times are darkest.

The rules of this challenge are as follow:

  • Thank the person who nominated you
  • Post a quote for 3 consecutive days (1 quote for each day)
  • Share why this quote appeals to you
  • Nominate 3 different bloggers for each day

Today’s quote:

[Tweet “Be who you are and say what you feel, because those who mind don’t matter and those who matter don’t mind”]

This quote immediately came to me, especially after sharing an old post that I wrote two years ago.  We have all been in the position in which other people have hurt us, either by their actions or by their words.  When living with a chronic illness, there are many ways in which I and others who’ve been hurt by the actions or words of other people.

One such example is by being ostracised or excluded from social engagements, and although many of these many instances may not be intentional, it doesn’t nevertheless lessen the hurt. When our conditions are invisible, many people may even doubt your illness, which when you continuously suffer from debilitating symptoms, it can hurt even more than any symptom can.  But, just as the quote above states, those who matter are the ones who believe us even when every test fails to provide any answers.  The ones who matter are those who are always there for us whenever we need a shoulder to cry on, in need of help around the house or need groceries or other essentials we’re unable to get ourselves.

Those who doubt us exclude us or hurts us don’t matter, and we should only concern ourselves who do.

And my nominees for today are:

Thank you so much to Robert from A 30 Minute Life and Jen from Tripping Through Treacle for nominating me to take part in this brilliant quote challenge!

Anyone who knows me will know that I love quotes and positive affirmations to remind me of the beauty that exists in the world despite the darkness and all of the terrible atrocities that happen all around the world.  As someone living with chronic illness and who regularly struggles, bombarded with many different symptoms, quotes are a helpful reminder that there is still good that exists in my life, and the bad days will pass, making room for days full of joy and positivity!

The rules for this challenge are as follow:

  • Thank the person who nominated you
  • Post a quote for 3 consecutive days (1 quote for each day)
  • Share why this quote appeals to you
  • Nominate 3 different bloggers for each day

[Tweet “For I’m not afraid of storms, for I’m learning how to sail my ship”]

 

‘Little Women’ has always been one of my favourite novels, having read since I was a young girl.  This beautifully written novel has always spoken to me, being able to relate to the struggles of each of the four siblings at different times of my life.

It has always been one of my favourite quotes from ‘Little Women’ book, serving to remind me that although storms elicit panic and fear, these are the conditions that we often learn the most.

For me, living with a neurological condition, the many challenging flares that I’ve experienced has only sharpened my awareness of the coping strategies that best help manage the symptoms, and in turn, helping when the inevitable next flare strikes, making the storm less severe, and me better at handling the rough waves.

My nominees for today are:

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