to top

Share your Story. Share your Strength…

Hey Everyone Some of you may know that I am involved with a new project called Neuro Nula. This site is a new online community for those with neurological conditions, their carers and families and its aim is to bring patients and their families together to share their stories, experiences, advice and most of all their support to help others and to make new and lasting friendships. The site will include stories of patients with a variety of neurological conditions, as well...

Continue reading

HAWMC 2013 Day 4: Sharing Resources

Welcome to the Health Activist Writer's Month Challenge brought together by WEGO Health - a social network for all health activists.  Again, I am participating in the annual Writer's Month Challenge in which I will be writing about my health activism and health condition based upon prompts given. Today's prompt is as follows: Create a "care page" - a list of your best resources that someone who is newly diagnosed could go when starting to advocate for themselves or a loved one....

Continue reading

Winter and Ice has arrived!…My Nemesis…

Hey Everyone I hope that everyone is well and so far is experiencing a great 2013!  For those living in the UK, as I am you may be aware that the country has been affected by snow and icy conditions; schools have closed here in Wales because of widespread icy conditions therefore making driving hazardous. I know for many, snow brings joy and happiness - the picturesque scenes that it creates as well enjoying snowball fights and so on....

Continue reading

Summer’s Here!…And worsening of some symptoms??

Hello, Everyone! I hope you are doing well and are AWAP (as well as possible!) and I hope that everyone has been able to enjoy the great weather we've had (granted, for those of us in the UK, it's only been a week or so!). Anyway, although it has been delightful to see bright blue skies and the feeling of warm sunshine on my skin, the hot weather and particularly the humidity at night has been playing havoc with the symptoms...

Continue reading