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Welcome to the Health Activist Writer’s Month Challenge brought together by WEGO Health – a social network for all health activists.  Again, I am participating in the annual Writer’s Month Challenge in which I will be writing about my health activism and health condition based on given prompts.

Thursday 16th April: Life Goal

What’s one thing that your 10-year-old self thought you would do?  Can you still do it?  How would you approach it to make it happen?

Me at ten years old really seems like a lifetime ago; more than the nineteen years that have passed since.

In all honesty, I cannot remember anything that I thought I would do as an adult.  By that age, the dizziness that now is constant in my life had started.  At ten, the dizziness was not constant but was experiencing episodes of severe dizziness and vertigo.  These episodes were becoming very frequent, and as a result, it felt like most of my time was spent waiting for the next attack.

As at the age of 10, I was not really aware of what was happening in regards to my health and the reasons for the dizziness; but experiencing frightening symptoms at a young age can be anxiety provoking.  It makes you aware of the present, constantly on edge for the next attack. As a result of waiting and worrying for the next attack of the dizziness, I was therefore not thinking or making plans for the future.  I was too preoccupied with the present and the symptoms that were afflicting my life.

Life often has a way of making us to look at the past, present and future
Life often has a way of making us look at the past, present and future

Although, as a child who has always been studious, I suppose that I have always had the wish to further my education and attend university.  At that age, like many children at that age, my career aspirations were constantly changing; from wanting to become a teacher at one point to wanting to become a nurse during another.  Even if I do not make any more of my past aspirations a reality, at least I have made that university plan a reality, gaining a degree in Psychology.   Attending university and getting that degree whilst living with a neurological condition, and battling against the dizziness, fatigue, and pain was not easy and had to have a lot of help (such as a buddy to take me to lectures) from family as well as the university staff to make it happen.

Fast forward to me at twenty-nine and I suppose I still tend to focus on the present (and occasionally on the past) and not on the future.  It can be scary and worrisome to make plans for the future when living with a chronic illness, as we have no control or even an idea as to what our health will be like in months or years to come.  Experience from having to cancel plans with friends as a result of chronic illness, warns us of the perils of making short-term plans, so making more long-term plans is even more difficult.

The-Challenge-Of-Living-In-The-Present-Momentjpg

 

Over the past several years, the symptoms caused by my neurological condition, have become increasingly worse, so looking ahead to the future is a frightening prospect at the thought that in the years to come, my condition will be even worse than it is, therefore, perhaps when living with a chronic illness it is best to live in the present and appreciate all the little happy moments that happen in the here and now.

Today's a gift. That's why it's

 

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Welcome to the eleventh day of the National Health Blog Post Month Challenge hosted by WEGO Health.   Every day during the month of November I will be writing a new blog post related to health and living with a chronic illness based on given prompts provided by WEGO Health.

Today’s prompt reads:

Veteran’s Day: For all our veterans and family members, we celebrate this day because it marks the end of WWI, at the 11th hour on the 11th day of the 11th month.  Do you have a task you complete every day at the same time that helps with your chronic illness?  How long have you been doing this, how has it helped?

I cannot say that I complete a task every day, at the same time which helps with my chronic illness.  In my personal experience, no two days are exactly the same when living with a chronic illness.  In addition, life with a chronic illness can instantly change within a blink of an eye; one minute the symptoms are in the background, calm…and the next minute they are wreaking havoc amongst your body and impacting upon your life and your routines.  For example, very often the neurological condition that I live with causes such severe weakness in the legs and intense dizziness that I am unable to get out of bed, and even if I did have task that I complete every day at the same time, I could not very well leave my bed to complete the task.

 

Keeping to a routine can be very difficult when living with a chronic illness
Keeping to a routine can be very difficult when living with a chronic illness

 

Making plans, whilst living with a chronic illness can also prove be very difficult as because every day is so very different, we can never tell how we will feel on that particular day.  Do we dare to book tickets for a concert or play just in case we are unable to attend?  We are ruled by our bodies and as a result we are governed by our conditions and its symptoms; dizziness, pain, weakness or overwhelming fatigue may result in a person with a chronic illness to cancel plans, or cease our routines to rest and recuperate.

 

Cancelling plans can be as disappointing to us as it is for our friends and family...
Cancelling plans can be as disappointing to us as it is for our friends and family…

 

Recently, I have even been finding that the coping strategies that I do have in place regarding the dizziness, can work one day but as the intensity of the dizziness may be worse the next, these coping strategies are not proving to be effective.  So, to conclude, living with chronic illness can vary from day-to-day; and even from hour to hour or in certain cases from minute to minute, and although we all would like little tasks and routines to complete every day to make us feel better, our illnesses can prevent us from completing them, ruining all of our plans and routines.  Certainly, life with chronic illness is never the same from day-to-day….

 

At the end of this post, as it is Remembrance Day, I would like the opportunity to pay tribute to every member of the armed forces, past and present;  all of their hard work and sacrifices that they make in serving our country and allowing us the freedom that we are so fortunate to have today.  You are all heroes and we will remember all those from all the wars that were not so fortunate to return home to loved ones.  I certainly will be wearing my poppy with pride today…

 

Wearing my Poppy with pride today! #lestweforget
Wearing my Poppy with pride today! #lestweforget

 

As always would love to hear your thoughts and views!  Do you have any strict routines you adhere to when dealing with chronic illness?  Does it help?  Please leave comments below!

Well, everyone welcome to another post of the WEGO Health ‘National Health Blog Post Month’ for 2012.  I will write another post tomorrow which will sum up the experience of the month-long writing challenge, and a quick recap of the topics that have been covered and so on.

The prompt that I have chosen for today asks us about future plans, and what accomplishments we would like to complete during the coming year.

Plans? That word is one which the chronically ill hates – living with a chronic illness makes it hard to make any kinds of plans.  Never knowing how you will feel day-to-day, or even from one moment to the next makes it almost impossible to make plans.  We don’t like to make concrete plans such as booking tickets to see a show or a music concert just in case we are unable to attend.  And when friends asks us out somewhere; our response is usually “I would love to, but I will have to say how I am on the day.  Is it okay if I get back to you?”  It can be very frustrating, not being able to do all the things we like, when we want to do them.  Often, when we cancel plans with friends a lot of the time; these friends stop asking; in this case, of course they are not real friends anyway.

But that said, in 2013 I would like to be able to accomplish going out regularly like I have been doing with my P.A, and pushing my comfort zones somewhat; to try going to new places.  The most difficult aspect of the condition which I live, is the difficulty which I have with big, spacious buildings which have high ceilings, not only does it mean that I miss out on going to some of my favourite shops that are near to me, but also narrows my world that bit more, especially as many of the new shops that are being built have high ceilings.

But maybe if I push myself that little bit more, I will be able to go in them, even for short periods of time, so I can buy the clothes that I would like (and so I don’t have to worry about postage and package costs).  I know it won’t be easy; the dizziness will be extremely intense, and will probably feel incredibly unwell and weak afterwards, but is that the price I will have to pay to lead a more ‘normal’ life? It will give me more confidence and widen my world more, given me more places that I can explore!…

What would you like to accomplish during 2013?

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