to top

Sailing Away to Acceptance…

How does the old saying adage go?  What a difference a year makes. And, my recent experiences can only substantiate this. Regular readers of the blog will remember that last year, I experienced my very first cruise and that unfortunately, it did not go as well as my parents and I had hoped. The symptoms associated with this neurological condition were consistently present and remarkably severe that it affected my enjoyment of the holiday and also left me unable to disembark the ship...

Continue reading

Think you know my health condition? Then can you spot the incorrect statement…

  Welcome to the eighteenth day of the National Health Blog Post Month Challenge hosted by WEGO Health.   Every day during the month of November I will be writing a new blog post related to health and living with a chronic illness based on given prompts provided by WEGO Health. Today's prompt reads: Three Truths and a Lie: Tell us three things that are true about you, your condition, your Health Activism, or your life.  Now tell us a lie.  Do you think we will...

Continue reading

Social Media and the chronic illness experience

This post is for the 'Patients for a Moment Blog Carnival' hosted by Leslie at 'Getting Closer to Myself'. This month's theme is Social Media and illness, with which there are two parts!  The first part is to describe our illness using just 140 characters; just as if we were using Twitter to do so.  This could just be one statement characterising the illness experience, or a series of statements of 140 characters. The second part of the challenge asks us to...

Continue reading

HAWMC 2013 Day 6: A Letter to my Condition….

Welcome to the Health Activist Writer's Month Challenge brought together by WEGO Health - a social network for all health activists.  Again, I am participating in the annual Writer's Month Challenge in which I will be writing about my health activism and health condition based upon prompts given. Today's prompt reads as follows: Write a letter to your condition - what do you want to get off your chest?  Unfortunately, today I am feeling particularly unwell, and am not feeling up to writing....

Continue reading

HAWMC 2013 Day 2: Brain Stem Lesion? Here’s all you need to know…

    Welcome to the Health Activist Writer's Month Challenge brought together by WEGO Health - a social network for all health activists.  Again, I am participating in the annual Writer's Month Challenge in which I will be writing about my health activism and health condition based upon prompts given. Today's prompt is as follows: Introduce your condition(s) to other Health Activists.  What are 5 things you want them to know about your condition/your activism  For you all that are new to the blog and...

Continue reading