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My Inspiration…

Over at WEGO Health this month is 'Health Activist Inspiration Month'.  The purpose of this month is to celebrate what drives health activists to empower themselves and others as well as the inspiration behind what makes them carry on the important work.  As part of the celebrations, I have decided to share the inspiration behind the blog and what inspires me personally. My inspiration comes from the loneliness and isolation that I felt after my diagnosis of a long-standing brain stem...

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WEGO Health Advocating for Another Carnival: Once Upon a Time…

Welcome again to another WEGO Health Advocating for Another Carnival, it's the fifth day and the prompt is as follows: It's storytelling day! Write a story about yourself, your community as though you are a children's book author.  Be sure to include a beginning, middle, and end.  Extra points for illustrations!  I love this prompt! It's really different and am sure it is a style of writing us health activists haven't tried before.  It seems to be a lot harder than it...

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Fighting the Battle…

Hey Everyone Haven't posted in a while, for which I apologise for, but lately am finding things so tough as of late. The symptoms that I experience with my condition - as I have mentioned before: Dizziness Stiffness and weakness in legs (Spastic Paraparesis) Sporadic episodes of vertigo with visual disturbances such as double vision, tunnel vision All these seem to worsening...

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The role of support and health communities for people living with chronic and long-term conditions…

Hey Everyone Sorry, I have not posted for a bit but I have been unwell as my Dad has kindly given me his cold - which has made me feel very unwell and extremely lethargic. Today, I would like to discuss the role of support groups and other health communities out there for people, like myself who have chronic and long-term health conditions.  These online support groups and communities, for me, has been a god send - as I find myself feeling...

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