diagnosis Archives – My Brain Lesion and Me

Being undiagnosed and having no answers for the peculiar going on inside our bodies is very much like being stuck in a darkened room with no light. [caption id="attachment_71739" align="alignnone" width="1125"] Living without a diagnosis is very much like life in the dark[/caption] After every uneventful doctors' appointments, and every negative test results only moves the light switch further from our grasp, and we remain, still in the dark. You begin to fear every upcoming appointment for the worry that this meeting will...

Chronic Illness

Diagnosis is not the end of the story…

May 23. 2016

Recently, after another hospital letter landed on the doormat, it was time yet again for a visit to the consultant neurologist, whose care I am under in the attempt to shed some light on the medical mystery that feels has become my life. The beginning of the appointment was the benign initial chat on how I have been feeling since the last appointment (a really short time to cover a year in just a few minutes!) and the regular neurological examination,...

Chronic Illness, Writing Challenges

HAWMC 2013 Day 12: “When I was diagnosed I wish I knew….”

Apr 12. 2013

Welcome to the Health Activist Writer’s Month Challenge brought together by WEGO Health – a social network for all health activists. Again, I am participating in the annual Writer’s Month Challenge in which I will be writing about my health activism and health condition based upon prompts given. Today’s prompt is as follows: If you could go back in time and talk to yourself (or your loved one) on the day of diagnosis, what would you say? Getting a diagnosis for me,...

Chronic Illness

Am Taking Part in an Invisible Illness Panel!

Sep 25. 2012

Hello Everyone I just wanted to let you all know that tomorrow at 12.00 p.m. EDT (4.00 p.m. GMT) I will be taking part in an Invisible Illness Panel with WEGO Health and Christine Miserandino from 'But You Don't Look Sick' who is very influential within the Invisible Illness Community, the author of the wonderful and relevant 'Spoon Theory' and whom coined the phrase 'spoonies' for all those living and dealing with invisible chronic illness. The topic will be the Journey...

Chronic Illness

How I Got To Where I Am…

Jan 10. 2012

Well, thought it was important to give some more information regarding my journey of me and my condition. I was born in 1986. Odd thing was, that when I was first-born the doctors thought there was something wrong me then...